NHLBI-MDS – The National Myelodysplastic Syndromes (MDS) Study

The mission of The National MDS Study is to build a resource that scientists can use to learn more about a group of rare bone marrow diseases called myelodysplastic syndromes (MDS). The National MDS Study will enable scientists to conduct research that will improve the way MDS is diagnosed and how it is treated. The study will also enable scientists, patients, and their families to better understand what to expect when a patient is diagnosed with MDS.

Physician and Research Staff Educational Materials:

These materials are intended for promotional use among health care professionals and are NOT intended for use as patient educational materials.

  • Physician Fact Sheet: schema, study objectives, eligibility criteria, and other key information about the study.
  • Site Process Summary: schema, objectives, and details about how your site can participate.
  • GlobalTrace Procedure Updates: updates regarding the NHLBI-MDS study, including procedures for entering Bone Marrow Kits into GlobalTrace and new instructions for handling expired specimen collection kits.

Information and Assistance from the National Cancer Institute:

  • Trained information specialists at the NCI are available to answer cancer-related questions from patients, family members or friends, health care providers, and researchers. Visit the NCI’s Cancer Information Service webpage for contact instructions, including telephone, live chat, email, and mail.

Additional Information on ClinicalTrials.gov: Displayed below is an interactive view of the study record as it appears in the government registry. If you are experiencing technical difficulties with this view, visit clinicaltrials.gov and search for record NCT02775383.